Empowering Wives of ALS to Navigate Their Journey with Compassion, Support and Resources
Together With ALS walks beside the wives of husbands living with amyotrophic lateral sclerosis — the caregivers, advocates, and partners whose quiet courage holds whole families together. You are not alone on this road.
Amyotrophic lateral sclerosis — known as Lou Gehrig's disease — is a progressive neurodegenerative condition that attacks motor neurons in the brain and spinal cord. As muscles weaken, the person loses the ability to walk, speak, swallow, and eventually breathe. There is no cure. And behind every patient stands a spouse whose life changes just as profoundly.
We exist to provide unwavering support to the courageous wives of husbands with ALS — recognizing their vital role as caregivers and partners. With compassion at our core, we empower these remarkable women to navigate their ALS journey with strength, resilience, and renewed hope.
Professional respite care so wives can rest, heal, and be present for themselves too.
One-on-one counseling and online support groups connecting wives who truly understand.
Paid legal planning to safeguard families financially and give peace of mind for what's ahead.
Dedicated advocates who navigate insurance, appointments, and treatment decisions alongside you.
Facilitated access to new and gently-used medical equipment — wheelchairs, lifts, speech devices.
A private circle of sisters who've walked this road — meeting virtually, holding space weekly.
A 25-minute documentary short directed by Kimber Leigh and Diane M. Dresback, offering honest and raw insight into the daily realities of a wife coping with her husband's terminal ALS diagnosis — and how she maintains hope, humor, and grace through it all.
Filmed in Arizona, the film shines a light on the hidden side of ALS: the spouses and families who become caregivers overnight, often without a roadmap.
"ALS doesn't just take a body — it rewrites a marriage, a household, a future. The wives who stay, who fight, who love through it all deserve a whole community standing beside them."
If you're a wife facing ALS, we want to hear from you. If you're a donor, volunteer, or partner who wants to lighten someone's load today, we want to hear from you too. Every connection starts a conversation.